5 Things to do While Waiting on Disability

Many of us Spoonies, myself included, are rendered disabled by their illnesses. That means we get the pleasure of applying for disability benefits through the government. This is truly a delightful experience for anyone who enjoys slow horrendous torture, however, for others, you may find the wait less than desirable. The national average wait time, after all, is 2-3 years.

I am currently 1 year into my 2-3 year wait. I have obtained a lawyer (which I highly recommend doing), I have received my multiple denial letters, and I have even enlisted a state senator to help plead my case. Even still, all I really can do is wait. So I thought that I would share with all of you some of the wonderful options you have of things to do while you wait for your day in court. WARNING: horrible illustrations are included in this article.

1. whither away and die

Let’s start with the most obvious option, although, it’s not one that I recommend. The truth of the matter is that 2-3 years is a long time to not have a regular income. This typically leads to limited access to health care. Can you see how things are kinda moving in the opposite direction here?

2. cry

This is another unfortunate option, but it certainly will pass the time. Cry over bills that can’t be paid. Cry over the rapidly reducing number in your bank account. Cry over ailments that you can’t treat because you can’t afford to go to the doctor. Cry over the uncertainty of the future. Cry because you can’t stop crying.

At least we’ll all have puffy eyes together.

These, children, are what we called cord phones. It’s an ancient technology.


3. Call around

Not to anyone in particular. In fact, feel free to dial numbers at random. Call and cry to whoever answers about how you are withering away while waiting for disability. Who knows, maybe you’ll luck out and reach a judge or something. Maybe you’ll accidentally dial the one person who can push your case through. Maybe you’ll accidentally call that grandma that always complains that you don’t call enough. But, if not, at least you’ll get the satisfaction of knowing that you helped spread your misery around to unsuspecting strangers.

Maybe you’ll even make a friend, since everyone knows that once you’re debilitated and broke, you stop seeing a lot of your regular friends.

4. crafts

Knit. Sew. Craft in any way possible. Not only is this a great way to pass the time, but it’s practical, too. After all, you’re going to need to get clothes somehow now that you’re broke and waiting for the government to decide that you can receive the disability benefits that you’ve been paying into your entire career.

Make hats, scarves, gloves, and socks to keep you and your family warm in winter while your heat is out. Make bathing suits for the hot summers without air conditioning. Get out there and get crafting.

5. Watch all the tv

Since you can’t work, at least not full-time, and you can’t do much else, why not take this time to explore the entire Netflix library. Hop over to Amazon streaming and enjoy the wonderful movies and tv shows depicting happy able bodied people who have never imagined waiting two years to get a paycheck. Jump onto Hulu (they have Seinfeld after all) and feast on all that they have to offer. The options are limitless, or are they? I don’t know, it’s now your job to find out.

Channel your inner Carrie Bradshaw.


6. bonus item: blog

Why cry to strangers on the phone when you can do it all through your very own platform online? No need to go through the awkward pauses that will surely arise in a disability rant cold call. Just type away your feelings and make sure you share it with all of your friends. And their friends. And their friend’s friends. And their friend’s friend’s Great Aunt Sally. In my humble opinion, it is the smartest of all the options. Obviously.


In all seriousness, because this post definitely shouldn’t be taken seriously, waiting on your disability approval and benefits is not the greatest of times. It is stressful, terrifying, frustrating, and disheartening. But, know that you are not alone in that struggle. I’m right there with ya in the trenches.

I’d love to hear from you about your own experiences waiting for disability. Comment below with where you are in that journey.



© 2017 spooniewarrior.com


I am a mother, partner, teacher, daughter, writer, and blogger. I'm working on turning my private hobby into a public one, whether the public asked for it or not. I have a BA in theatre and a Master's in Education (with a Montessori integration), making me a highly overqualified internet ranter.

2 thoughts on “5 Things to do While Waiting on Disability

  • April 16, 2017 at 8:35 pm

    I know how you feel. In the one year mark myself and currently in appeal for my denial. It seems it is so much harder the younger you are. Hang in there and keep pushing. It will happen eventually. Just don’t let your appeals laps or else you have to start all over and you lose your back pay!

    • April 17, 2017 at 12:33 pm

      That’s good to know about the back pay! I have made it through all of the appeals. I’m now at the stage of waiting to get a hearing date…which seems to go on forever! Ugh. Good luck to you for your case!


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